ÐÇ¿ÕÓéÀÖ¹ÙÍø¡¯s Core Data Use Agreement Initiative

Purpose

ÐÇ¿ÕÓéÀÖ¹ÙÍø's Core Data Use Agreement (DUA) initiative focuses on enhancing data use and sharing agreements with public health jurisdictions across states, tribes, localities, and territories. On December 1, 2023, ÐÇ¿ÕÓéÀÖ¹ÙÍø adopted a new approach, introducing a "Core DUA" that unifies and enhances national data exchange. Following recommendations from the Advisory Committee to the Director (ACD) Data and Surveillance Workgroup, ÐÇ¿ÕÓéÀÖ¹ÙÍø is implementing a single agreement formalizing agency-to-agency data-sharing relationships.

Handshake

Core Agreement Components

  • Common Provisions: Terms applying across all core data sources, including confidentiality, security, data maintenance, routine uses, and reporting. These aim to provide clarity and uniformity regarding ÐÇ¿ÕÓéÀÖ¹ÙÍø's data practices across all information received from public health jurisdictions.
  • Data-Specific Addenda: Details unique to individual data sources, such as data standards or privacy requirements, offering flexibility for jurisdictions with legal restrictions.

Benefits of Core Agreement

  • Strengthens data sharing for routine and response purposes.
  • Increases trust and transparency in data exchange with health departments.
  • Supports future technological improvements.
  • Maintains necessary jurisdictional flexibility.

Impact

1) Reduces burden on health departments with a unified agreement.

2) Enhances partnership engagement and collaboration.

3) Establishes governance and accountability through a single point of contact.

ÐÇ¿ÕÓéÀÖ¹ÙÍø's Pathway to Core DUA

  1. Communication with Partners: Regular updates with jurisdictional and national partners.
  2. Negotiate and Sign Terms: Begin to negotiate Common Provisions and Addenda, starting with jurisdictions who currently send Core Data to ÐÇ¿ÕÓéÀÖ¹ÙÍø, with a goal of 15% of jurisdictions signing the Common Provisions by December 2024.
  3. Transition Existing DUAs into Addenda: Shift existing DUAs for Core Data Sources into Addenda, in order to streamline future negotiations and updates to DUAs, starting with jurisdictions who currently have a DUA for a Core Data source.
  4. Evaluate Success: Assess progress and opportunities for improvement.
  5. Ongoing Renegotiation: Evaluate need to add additional data sources as Addenda as needed for data sources beyond the core data. Iterate to meet the needs of all partners.