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For the Community, by the Community: Advancing Research for Latino Communities in Dementia Care Following the Guidance of Latino Older Adults

PEER REVIEWED

The timeline spans from meeting planning to postmeeting debriefing. Planning is 2 months; activities are 1) contacting advisors over the telephone (eg, text, telephone call, WhatsApp) to identify availability for upcoming meetings and 2) revise agenda items and necessary materials for meeting. Delivery of materials is 1 to 2 weeks; activities are 1) visiting advisors for 30 to 90 minutes to deliver materials and have informal conversations about their perceptions of the meetings (sharing coffee or food is common) and 2) if applicable, check if electronic devices are in working order. Preparation for the meeting occurs the day before the meeting; activities are to 1) send reminders of meeting details and 2) contact advisors to confirm attendance. On the day of the CAB meeting, activities are 1) send meeting link 2 to 4 hours before the event, 2) advisors that have issues connecting receive a phone call for troubleshooting, 3) the principal investigator facilitates the meeting, and 4) advisors set agenda for next meeting and pick date (if possible). For the postmeeting debrief 1 to 6 weeks after the meeting, activities are 1) debrief meeting within the research team (eg, What called our attention? What worked well? What can we do better?) and 2) follow-up or complete action items from previous meeting. For staff members, outreach specialist (OS) has the primary role for the meeting planning, delivery of materials, and preparation for meeting steps while research coordinator (RC) or research specialist (RS) and the principal investigator (PI) have the support role. For the meeting and postmeeting debrief, the principal investigator has the primary role while the research coordinator (RC) or specialist (RS) and the outreach specialist (OS) have the support role.

Figure.
The process of scheduling and facilitating meetings of the community advisory board (CAB) for dementia care in Latino communities, Madison, Wisconsin.

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Panel A shows a flyer with considerable text to explain the importance of eye examinations for people with diabetes. There are photographs of a normal retina and one affected by diabetic eye disease, a photograph of equipment being used to make retinal photographs, and photographs of the images on a computer screen. Panel B shows the revised flyer using the same photographs but with much less text, lighter colors are used for highlighting some text, and one section of dense text has been revised to a simple bullet list of information. The revised flyer also has a definition of retinography; the order of the sections was modified to provide information about the cost and process later in the flyer; and language was modified to be easier to read and minimize the use of words that are not commonly used.

Figure. Sample of a flyer in Spanish modified by the community advisory board for project TeleOjo. Panel A is the original flyer, a version of what was already being used in English. Panel B is the flyer after modifications by community advisory board members. The English translation of this flyer appears below the flyer in Spanish.

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