ÐÇ¿ÕÓéÀÖ¹ÙÍø

ÐÇ¿ÕÓéÀÖ¹ÙÍø scientific articles

2025

Blood Adv. 2025:bloodadvances.2024013594. McGee BT, Attell BK, Marton J, Harris A, Alfrey B, Cohen L, Snyder AB.

2024

JMIR Public Health Surveill. 2024;10:e64995. Miller JI, Hassell KL, Kellar-Guenther Y, Quesada S, West R, Sontag M.

Pediatr Blood Cancer. 2024;71(7):e31042. Shi JS, Sutaria A, Lakshmanan S, Attell B, Zhou M, Tang A, Eckman J, Snyder A.

JAMA Netw Open. 2024;7(1):e2351618. Peng HK, Dombkowski KJ, Plegue MA, Latta K, Malosh R, Creary MS, Reeves SL.

Prog Community Health Partnersh. 2024;18(3):371-380. Young AJ, Maresh A, Pope S, Blaylark R, Lakshmanan S, Stephens L, Aderojou R, Meier E, Gibson G, Okolo A, Cromartie S, Coker N, Paulukonis S, Fields J, Kaur M, Desai J.

View LargerDownload

ÐÇ¿ÕÓéÀÖ¹ÙÍø’s Sickle Cell Data Collection Program builds bridges between community-based organizations and scientists. What did we learn from these partnerships?

-Priorities trust-building

-Establish shared goals and define expectations

-Leverage strengths for mutual benefit

-Incorporate community voices from the beginning

-Foster open communication

-Seek out diverse partnerships and perspectives

Consider how these lessons can help your program build stronger partnerships.

Young AJ, Maresh A, Pope S, et al. Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together. Prog Community Health Partnersh. 2024;18(3):371-380.

Show Text Description

Pediatrics. 2024;153(4):e2022060804. Anderson AT, Mack WJ, Horiuchi SS, Paulukonis S, Zhou M, Snyder AB, Doctor JN, Kipke M, Coates T, Freed G.

JAMA Pediatr. 2024;178(4):408-410. Snyder AB, Zhou M, Attell BK, Cohen LL, Carter S, Bock F, Dampier C.

Pediatr Blood Cancer. 2024;e31225. Swallow J, Latta K, Plegue M, Peng HK, Tipirneni R, Smith D, Lê-Scherban F, Dombkowski KJ, Reeves SL.

PLoS One. 2024;19(4):e0297469. Singh A, Brousseau DC, Dasgupta M, Shet AS, Field JJ, Brandow AM.

Telemed J E Health. 2024. Reeves SL, Plegue M, Patel PN, Paulukonis ST, Horiuchi SS, Zhou M, Attell BK, Pace BS, Snyder AB, Plaxco AP, Mukhopadhyay A, Smeltzer MP, Ellimootil CS, Hulihan M.

BMC Emerg Med. 2024;24(1):134. Attell BK, Plaxco AP, Zhou M, Valle J, Reeves SL, Patel PN, Latta K, Smeltzer MP, Snyder AB.

JMIR Public Health Surveill. 2024;10:e57290. Valle J, Lebensburger JD, Garimella PS, Gopal S.

. Pediatr Blood Cancer. 2024;e31188. Rushing M, Horiuchi S, Zhou M, Kavanagh PL, Reeves SL, Snyder A, Paulukonis S.

JAMA Netw Open. 2024;7(7):e2421491. Horiuchi SS, Reeves SL, Plaxco AP, Peng HK, Zhou M, Kayle M, Hulihan M.

Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability — Sickle Cell Data Collection Program, 11 States, 2016–2020.
MMWR Morb Mortal Wkly Rep 2024;73:248–254. Kayle M, Blewer AL, Pan W, et al.

View LargerDownload

Children with sickle cell disease (SCD) have complex health needs that benefit from ongoing specialized health care

2 of 3 newborns with SCD are born to mothers who live in U.S. counties with high levels of social vulnerability* Social vulnerability includes factors such as poverty, lack of vehicle access, and crowded housing

Communities can provide support by:

-Developing medical transportation reimbursement programs

-Developing innovative comprehensive care models

*State newborn screening program records, Sickle Cell Data Collection Program, 2016-2020

bit.ly/mm7312a1

March 28, 2024

Show Text Description

2023

AJPM Focus. 2023;3(1):100158. Attell BK, Barrett PM, Pace BS, McLemore ML, McGee BT, Oshe R, DiGirolamo AM, Cohen LL, Snyder AB.

JMIR Public Health Surveill. 2023;9:e42816. Singh A, Sontag MK, Zhou M, Dasgupta M, Crume T, McLemore M, Galadanci N, Randall E, Steiner N, Brandow AM, Koch K, Field JJ, Hassell K, Snyder AB, Kanter J.

Blood. 2023; 142 (Supplement 1): 3738. Singh A, Brousseau D.C., Osinski K, Brandow A.M.

Public Health Rep. 2023;333549231170229. Okolo AI, Jacob SA, Dixon BE, Valvi NR, Janson IA, Hardesty BR.

J Pediatr Hematol Oncol. 2023;45(4):174-180. Paulukonis ST, Snyder A, Smeltzer MP, Sutaria AN, Hurden I, Latta K, Chennuri S, Vichinsky E, Reeves SL.

Public Health Rep. 2023;333549231166465. Reeves SL, Horiuchi S, Zhou M, Paulukonis S, Snyder A, Wilson-Frederick S, Hulihan M.

JMIR Public Health Surveill. 2023 Jun 28;9:e42816. Singh A, Sontag MK, Zhou M, Dasgupta M, Crume T, McLemore M, Galadanci N, Randall E, Steiner N, Brandow AM, Koch K, Field JJ, Hassell K, Snyder AB, Kanter J.

JAMIA Open. 2023;6(2):ooad036. Smeltzer MP, Reeves SL, Cooper WO, Attell BK, Strouse JJ, Takemoto CM, Kanter J, Latta K, Plaxco AP, Davis RL, Hatch D, Reyes C, Dombkowski K, Snyder A, Paulukonis S, Singh A, Kayle M.

2022

WMJ. 2022;121(4):297-300. Singh A, Dasgupta M, Retherford D, Baker M, Hulihan M, Brandow AM.

. Telemed J E Health. 2022;28(8):1166-1171. Reeves SL, Patel PN, Madden B, Ng S, Creary SE, Smith D, Ellimoottil C.

Pediatr Blood Cancer. 2022;70(3):e30152. Tang AY, Zhou M, Maillis AN, Lai KW, Lane PA, Snyder AB.

PLoS One. 2022;17(10):e0276653. Valle J, Baker JR, Madrigal D, Ferrerosa J, Paulukonis S.

.
Blood Adv. 2022 Sep 13;6(17):5128-5131. Horiuchi SS, Zhou M, Snyder A, Paulukonis ST.

JAMA Health Forum. 2021;2(10):e213467. Kanter J, Meier ER, Hankins JS, Paulukonis ST, Snyder AB.

Surveillance for sickle cell disease — Sickle Cell Data Collection program, two states, 2004–2018.
MMWR Surveill Summ. 2022;71(9):1-18. Snyder AB, Lakshmanan S, Hulihan MM, Paulukonis ST, Zhou M, Horiuchi SS, Abe K, Pope SN, Schieve LA.

.
JAMA Health Forum. 2022;3(11):e224780. Stephenson, J.

2021

JAMA Netw Open. 2021;4(10):e2128971. Mathias JG, Nolan VG, Klesges LM, Badawy SM, Cooper WO, Hankins JS, Smeltzer MP.

Health Sci Rep. 2021;4:e323. Wong TE, Valle J, Paulukonis S.

2020

Pediatr Hematol Oncol. 2020;1-5. Aluc A, Zhou M, Paulukonis ST, Snyder AB, Wong D, Hulihan MM.

J Palliat Med. 2020;23(1):24-32. Johnston EE, Adesina OO, Alvarez E, Amato H, Paulukonis S, Nichols A, Chamberlain LJ, Bhatia S.

Pediatr Blood Cancer. 2020;67(5):e28152. Kayle M, Valle J, Paulukonis S, Holl JL, Tanabe P, French DD, Garg R, Liem RI, Badawy SM, Treadwell MJ.

2019

Public Health Rep. 2019;134(3):274-281. Snyder AB, Zhou M, Theodore R, Quarmyne MO, Eckman J, Lane PA.

Pediatr Blood Cancer. 2019;66(10):e27921. Tang A, Branscomb J, Zhou M, Snyder A, Eckman J.

2018

2017

ÐÇ¿ÕÓéÀÖ¹ÙÍø Grand Rounds: Improving the lives of persons with sickle cell disease.
MMWR Morb Mortal Wkly Rep. 2017; 66:1269–1271. Hulihan M, Hassell KL, Raphael JL, Smith-Whitley K, Thorpe P.

Pediatr Blood Cancer. 2017; 64(6). Paulukonis ST, Feuchtbaum LB, Coates TD, Neumayr LD, Treadwell MJ, Vichinsky EP, Hulihan MM.

J Rare Dis Res Treat. 2017; 2(4):39–45. Snyder AB, Lane PA, Zhou M, Paulukonis ST, Hulihan MM.