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Articles about SCD

2025

Blood Adv. 2025:bloodadvances.2024013594. McGee BT, Attell BK, Marton J, Harris A, Alfrey B, Cohen L, Snyder AB.

2024

JMIR Public Health Surveill. 2024;10:e64995. Miller JI, Hassell KL, Kellar-Guenther Y, Quesada S, West R, Sontag M.

Pediatr Blood Cancer. 2024;71(7):e31042. Shi JS, Sutaria A, Lakshmanan S, Attell B, Zhou M, Tang A, Eckman J, Snyder A.

JAMA Netw Open. 2024;7(1):e2351618. Peng HK, Dombkowski KJ, Plegue MA, Latta K, Malosh R, Creary MS, Reeves SL.

Prog Community Health Partnersh. 2024;18(3):371-380. Young AJ, Maresh A, Pope S, Blaylark R, Lakshmanan S, Stephens L, Aderojou R, Meier E, Gibson G, Okolo A, Cromartie S, Coker N, Paulukonis S, Fields J, Kaur M, Desai J.

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ÐÇ¿ÕÓéÀÖ¹ÙÍø’s Sickle Cell Data Collection Program builds bridges between community-based organizations and scientists. What did we learn from these partnerships?

-Priorities trust-building

-Establish shared goals and define expectations

-Leverage strengths for mutual benefit

-Incorporate community voices from the beginning

-Foster open communication

-Seek out diverse partnerships and perspectives

Consider how these lessons can help your program build stronger partnerships.

Young AJ, Maresh A, Pope S, et al. Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together. Prog Community Health Partnersh. 2024;18(3):371-380.

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Pediatrics. 2024 Apr 1;153(4):e2022060804. Anderson AT, Mack WJ, Horiuchi SS, Paulukonis S, Zhou M, Snyder AB, Doctor JN, Kipke M, Coates T, Freed G.

JAMA Pediatr. 2024;178(4):408-410. Snyder AB, Zhou M, Attell BK, Cohen LL, Carter S, Bock F, Dampier C.

Pediatr Blood Cancer. 2024;e31225. Swallow J, Latta K, Plegue M, Peng HK, Tipirneni R, Smith D, Lê-Scherban F, Dombkowski KJ, Reeves SL.

PLoS One. 2024;19(4):e0297469. Singh A, Brousseau DC, Dasgupta M, Shet AS, Field JJ, Brandow AM.

Telemed J E Health. 2024. Reeves SL, Plegue M, Patel PN, Paulukonis ST, Horiuchi SS, Zhou M, Attell BK, Pace BS, Snyder AB, Plaxco AP, Mukhopadhyay A, Smeltzer MP, Ellimootil CS, Hulihan M.

BMC Emerg Med. 2024;24(1):134. Attell BK, Plaxco AP, Zhou M, Valle J, Reeves SL, Patel PN, Latta K, Smeltzer MP, Snyder AB.

JMIR Public Health Surveill. 2024;10:e57290. Valle J, Lebensburger JD, Garimella PS, Gopal S.

Pediatr Blood Cancer. 2024;e31188. Rushing M, Horiuchi S, Zhou M, Kavanagh PL, Reeves SL, Snyder A, Paulukonis S.

JAMA Netw Open. 2024;7(7):e2421491. Horiuchi SS, Reeves SL, Plaxco AP, Peng HK, Zhou M, Kayle M, Hulihan M.

Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability — Sickle Cell Data Collection Program, 11 States, 2016–2020.
MMWR Morb Mortal Wkly Rep 2024;73:248–254. Kayle M, Blewer AL, Pan W, et al.

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Children with sickle cell disease (SCD) have complex health needs that benefit from ongoing specialized health care

2 of 3 newborns with SCD are born to mothers who live in U.S. counties with high levels of social vulnerability* Social vulnerability includes factors such as poverty, lack of vehicle access, and crowded housing

Communities can provide support by:

-Developing medical transportation reimbursement programs

-Developing innovative comprehensive care models

*State newborn screening program records, Sickle Cell Data Collection Program, 2016-2020

bit.ly/mm7312a1

March 28, 2024

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JAMA Netw Open. 2024;7(1):e2351618. Peng HK, Dombkowski KJ, Plegue MA, Latta K, Malosh R, Creary MS, Reeves SL.

2023

AJPM Focus. 2023;3(1):100158. Attell BK, Barrett PM, Pace BS, McLemore ML, McGee BT, Oshe R, DiGirolamo AM, Cohen LL, Snyder AB.

JMIR Public Health Surveill. 2023;9:e42816. Singh A, Sontag MK, Zhou M, Dasgupta M, Crume T, McLemore M, Galadanci N, Randall E, Steiner N, Brandow AM, Koch K, Field JJ, Hassell K, Snyder AB, Kanter J.

Blood. 2023; 142 (Supplement 1): 3738. Singh A, Brousseau D.C., Osinski K, Brandow A.M.

JMIR Public Health Surveill. 2023;9:e42816. Singh A, Sontag MK, Zhou M, Dasgupta M, Crume T, McLemore M, Galadanci N, Randall E, Steiner N, Brandow AM, Koch K, Field JJ, Hassell K, Snyder AB, Kanter J.

JAMIA Open. 2023;6(2):ooad036. Smeltzer MP, Reeves SL, Cooper WO, Attell BK, Strouse JJ, Takemoto CM, Kanter J, Latta K, Plaxco AP, Davis RL, Hatch D, Reyes C, Dombkowski K, Snyder A, Paulukonis S, Singh A, Kayle M.

Public Health Rep. 2023;333549231170229. Okolo AI, Jacob SA, Dixon BE, Valvi NR, Janson IA, Hardesty BM.

Public Health Rep. 2023;333549231166465. Reeves SL, Horiuchi S, Zhou M, Paulukonis S, Snyder A, Wilson-Frederick S, Hulihan M.

J Pediatr Hematol Oncol. 2023;45(4):174-180. Paulukonis ST, Snyder A, Smeltzer MP, Sutaria AN, Hurden I, Latta K, Chennuri S, Vichinsky E, Reeves SL.

Pediatr Blood Cancer. 2023;70(3):e30152. Tang AY, Zhou M, Maillis AN, Lai KW, Lane PA, Snyder AB.

2022

WMJ. 2022;121(4):297-300. Singh A, Dasgupta M, Retherford D, Baker M, Hulihan M, Brandow AM.

. Telemed J E Health. 2022;28(8):1166-1171. Reeves SL, Patel PN, Madden B, Ng S, Creary SE, Smith D, Ellimoottil C.

Use of recommended health care measures to prevent selected complications of sickle cell anemia in children and adolescents — Selected U.S. states, 2019.
MMWR Morb Mortal Wkly Rep 2022;71:1241–1246. Schieve LA, Simmons GM, Payne AB, et al.

• Vital Signs: Preventing Sickle Cell Anemia Complications in Children

Pediatrics December 2022;150(6): e2022059491. Lewis L. Hsu, W. Craig Hooper, Laura A. Schieve.

PLoS One. 2022;17(10):e0276653. Valle J, Baker JR, Madrigal D, Ferrerosa J, Paulukonis S.

WMJ. 2022;121(4):297-300. Singh A, Dasgupta M, Retherford D, Baker M, Hulihan M, Brandow AM.

Surveillance for sickle cell disease — Sickle Cell Data Collection program, two states, 2004–2018.
MMWR Surveill Summ 2022;71(No. SS-9):1–18. Snyder AB, Lakshmanan S, Hulihan MM, et al.

Public Health Rep. 2022;137(2):234-238. Payne AB, Schieve LA, Abe K, Hulihan M, Hooper WC, Hsu LL.

Blood Adv. 2022;6(17):5128-5131. Horiuchi SS, Zhou M, Snyder A, Paulukonis ST.

2021

Pediatr Blood Cancer. 2021;68(12):e29351. Payne AB, Adamkiewicz TV, Grosse SD, Steffens A, Shay DK, Reed C, Schieve LA.

JAMA Health Forum. 2021;2(10):e213467. Kanter J, Meier ER, Hankins JS, Paulukonis ST, Snyder AB.

JAMA Netw Open. 2021;4(10):e2128971. Mathias JG, Nolan VG, Klesges LM, Badawy SM, Cooper WO, Hankins JS, Smeltzer MP.

Health Sci Rep. 2021;4(3):e323. Wong TE, Valle J, Paulukonis S.

2020

Emerging Infectious Diseases. 2020. Panepinto JA, Brandow A, Mucalo L, Yusuf F, Singh A, Taylor B, Payne AB, Peacock G, Schieve LA.

Annals of Emergency Medicine. 2020;76(3S):S28-S36. Payne AB, Mehal JM, Chapman C, Haberling DL, Richardson LC, Bean CJ, Hooper WC.

Pediatr Hematol Oncol. 2020;1-5. Aluc A, Zhou M, Paulukonis ST, Snyder AB, Wong D, Hulihan MM.

Pediatr Blood Cancer. 2020;67(5):e28152. Kayle M, Valle J, Paulukonis S, Holl JL, Tanabe P, French DD, Garg R, Liem RI, Badawy SM, Treadwell MJ.

J Palliat Med. 2020;23(1):24-32. Johnston EE, Adesina OO, Alvarez E, Amato H, Paulukonis S, Nichols A, Chamberlain LJ, Bhatia S.

2019

Pediatr Blood Cancer. 2019;66(10):e27921. Tang A, Branscomb J, Zhou M, Snyder A, Eckman J

Pediatr Blood Cancer. 2019;66(7):e27733. Yee MEM, Meyer EK, Fasano, RM, Lane PA, Josephson CD, Brega AG.

American Journal of Nursing 2019; 119 (6) 26-35. Tanabe P, Spratling R, Smith D, Grissom P, Hulihan M.

Public Health Rep. 2019;134(3):274-281. Snyder AB,Zhou M, Theodore R, Quarmyne MO, Eckman J, Lane PA.

Transfus Med. 2019. Fasano RM, Branscomb J, Lane PA, Josephson CD, Snyder AB, Eckman JR.

Nurs Res. 2019. Spratling R, Lawrence RH.

2018

Health Promot Pract. 2018;1524839918775733. Singleton A, Spratling R.

Transfusion. 2018. Yee MEM, Josephson CD, Winkler AM, Webb J, Luban NLC, Leong T, Stowell SR, Roback JD, Fasano RM.

2017

MMWR Morb Mortal Wkly Rep. 2017;66(46):1269-1271. Hulihan M, Hassell KL, Raphael JL, Smith-Whitley K, Thorpe P.

Pediatr Blood Cancer. 2017;64(6):10.1002/pbc.26390. Paulukonis ST, Feuchtbaum LB, Coates TD, Neumayr LD, Treadwell MJ, Vichinsky EP, Hulihan MM.

Transfusion. 2017;57(11):2738-2746. Yee MEM, Josephson CD, Winkler AM, Webb J, Luban NLC, Leong T, Stowell SR, Fasano RM.

J Rare Dis Res Treat. 2017;2(4):39-45. Snyder AB, Lane PA, Zhou M, Paulukonis ST, Hulihan MM.